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Cancer Survivor Study

Consent

You are being invited to participate in a research study titled “Social media use by cancer survivors and caregivers.” This study is being done led by Kathleen Wolin from Loyola University Chicago. De-identified data will also be shared with collaborators at the Duke University Digital Health Science Center. You were selected to participate in this study because you have indicated that you are either (a) a cancer survivor or (b) a caregiver for a cancer survivor. We define cancer survivor as anyone who has received a cancer diagnosis.


The purpose of this research study is to understand what types of social media cancer survivors and their caregivers use. We are also interested in perceptions and opinions from survivors and their caregivers on the strengths and weaknesses of those media. If you agree to take part in this study, you will be asked to complete an online survey/questionnaire. This survey/questionnaire will ask about your/your caregivee’s diagnosis and treatment. It will also ask about your use of and experience with different technologies, social media and internet platforms.


You may not directly benefit from this research; however, we hope that your participation in the study may provide important information about how survivors and their caregivers are using social media to obtain support and information. Our goal is to use the data collected to improve how support and information are disseminated on social media.


We believe there are no known risks associated with this research study; however, as with any online related activity the risk of a breach is always possible. To the best of our ability your answers in this study will remain confidential. We will minimize any risks by using secure data servers and storing data on password protected drives in double-locked offices.


Your participation in this study is completely voluntary and you can withdraw at any time. You are free to skip any question that you choose.


If you have questions about this project or if you have a research-related problem, you may contact the researcher(s), Kathleen Wolin at 708.327.9088 or kwolin@luc.edu. If you have any questions concerning your rights as a research subject, you may contact the Loyola University Chicago Human Research Protection Office (HRPO) at 708.216.4608 or irb@lumc.edu.


To learn more about the Cancer Survivor Study or Dr. Wolin, visit cancersurvivorstudy.com


Please print a copy of this page for your records.
1. By clicking “I agree” below you are indicating that you are at least 18 years old, have read and understood this consent form and agree to participate in this research study. *This question is required.