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Patient Perspectives: Clinical Trials 2019

Clinical Trials Survey 2019

The administrators of cancer clinical trials around the US, and the sponsors and large research organizations that support them have invited Patient Power co-founder, Andrew Schorr, to be the keynote speaker at their next national meeting.   Since the conference attendees rarely hear “the patient voice”,  Andrew wants to share your perspective on trials.  Please take a few moments to share yours now.  Thank you.
1. Are you a Patient or Care Partner/Family/Friend?
 
2. How likely is it that would you participate in a clinical research study?
 
Very unlikelyNot likelyUndecidedPossibly likelyVery likely
2. How likely is that you would encourage a patient to participate in clinical trial for their condition?
Very unlikelyNot likelyNeitherLikelyVery likely
2. Between your initial cancer diagnosis and your first treatment, did you ever consider participating in a clinical trial, and why?
 
2. At anytime, during your care, did your medical team discuss participating in a clinical trial?
 
2. Have you attended any medical appointments with a patient regarding their cancer condition?
2. In any medical appointments you attended with a patient, did the medical team ever discuss participation in a clinical trial for the patient's condition?
2. If Yes, was it discussed before your first cancer treatment, cancer retreatment, or both?
 
2. If Yes, was it discussed before the patient's first cancer treatment, cancer retreatment, or both?
 
2. If No, did you ever bring up the topic with your medical team and what was the response?
 
2. If No, did you ever bring up the topic with the patient's medical team and what was the response?
 
2. Have you participated in a clinical research study for your cancer?
 
2. Did the patient participate in a clinical research study for their cancer?
 
2. If Yes, how financially burdensome was it for you to participate in the clinical study/studies?
 
Quite financially burdensomeMildly financially burdensomeNot a financial burden
2. If Yes, how financially burdensome was it for you both/them to participate in the clinical study/studies?
 
Quite financially burdensomeMildly financially burdensomeNot a financial burden
2. If Yes, do you believe you derived clinical benefit from participating in the study/studies?
 
2. If Yes, did your treating physician believe you derived clinical benefit from participating in the study/studies?
 
2. If Yes, did the treating physician believe the patient derived clinical benefit from participating in the study/studies?
 
2. If Yes, do you believe the patient derived clinical benefit from participating in the study/studies?
 
2. If Yes, how far from your home to the clinical trial site did you have to travel?
 
2. If Yes, how far from  home to the clinical trial site did the patient have to travel?
 
2. Have you learned about clinical trials from Patient Power? 
 
3. If Yes, did you speak to your doctor about what you learned?
 
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