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NAACCR Grant Application Form – NCCR participation and VPR linkage with NCCR

Grant /Awards

Sample Testing Version
Congratulations!  Your registry has qualified for the opportunity listed below.  
 
National Childhood Cancer Registry (NCCR) participation: 
(Grant/Award: Funding TBD): To provide data on all childhood cancer cases for compilation into a National Childhood Cancer Registry.  Deliverables include the following:
  • Obtain necessary approvals for release of confidential data to IMS, Inc. (3rd party honest broker)
  • Submit an annual file of edited, consolidated, de-duplicated, identifiable data on all childhood cancer cases (age 0-19) diagnosed from 1995 to the latest diagnosis year
  • Include text documentation included in the abstracts from individual reports to support extraction of specific data items (e.g. chemotherapy agents) through the use of national language processing
Linkage with NCCR using the Virtual Pooled Registry (VPR): 
(Grant/Award: Funding TBD): To perform annual VPR linkage with the NCCR to help identify subsequent primaries within the NCCR cohort. Deliverables include the following:
  • Participate in annual VPR linkage between your full registry file and the NCCR cohort file to identify subsequent primaries
  • Utilize the VPR system and standard protocol for linkage using Match*Pro
  • Perform manual adjudication of possible matches
  • Submit data to IMS for incorporation into the NCCR
This question requires a valid date format of MM/DD/YYYY.
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This question requires a valid date format of MM/DD/YYYY.
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Applicant Information
This question requires a valid email address.
Application Narrative
Instructions: All applicants are required to submit a single application that includes the information requested below.
Registry Commitment
I attest that the registry intends to meet the deliverables according to this grant/award opportunity and as detailed in the proposed project plan/timeline *This question is required.
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